A big thank you to everyone who sent kind and thoughtful messages, and donated to support medical research to defeat Rett Syndrome. Theodore,. Studying [Henrys] cells helped us to think a little differently, to find yet one more approach for developing therapies for Rett, she said. But research takes time, and Zoghbi said shes heartbroken that she and her team werent able to bring to the table something that could help Henry directly. [10][11] He then spent his junior year of high school in Italy and became fluent in Italian. At age 13, he joined a wilderness survival camp where he learned about leadership and how to be more independent. This is how we will honor Henrys life, Zoghbi said at a recent event honoring Henry at the Duncan Neurological Research Institute at Texas Childrens Hospital in Houston, where she serves as director. It was fun. ", In another tweet on Thursday, Engel said: "Researchers are making amazing progress using Henry's cells to help cure RETT Syndrome so others don't have to endure this terrible disease. Engel opened up on the "Today" show in March with an emotional essay about his first son, Henry, finally saying "Dada" after being diagnosed with Rett Syndrome, a rare genetic neurological. He had a tremor. Engel wrote a personal essay in 2019 that shared the emotional triumph when his son finally said "dada" at the age of three years old. (Nathan Congleton/NBCU Photo Bank/NBCUniversal via Getty Images), NBC NEWS' RICHARD ENGEL SHARES HEARTBREAKING NEWS ABOUT YOUNG SON, ANNOUNCES HE'S DEVELOPED DYSTONIA. NBC News Chief Foreign Correspondent Richard Engel announced Thursday that his son Henry, 6, has died. The Tragic Death Of Richard Engel's Son - MSN Henry would have turned 7 today, Engel, 49, tweeted Thursday, alongside a photo of Henry. "Dear Henry, you will be missed. He followed the uprisings in Egypt, Syria, Libya, Tunisia, Bahrain, and Yemen. General Info Family Accomplishments Social profile links Facts Movies Awards Source: IMDb, Wikipedia Benjy P. Over the years, Engel has shared regular updates on his son's condition with the TODAY team and has been candid about the struggles and the joys of parenting a child with special needs. Copyright 2023 CBS Interactive Inc. All rights reserved. You just cant help it. Henry was born with a variation of Rett syndrome, a rare genetic disorder that starts with normal early development, which then starts to slow usually around 6 to 18 months of age, causing loss of use of the hands, problems with walking and intellectual disability, according to the National Institute of Neurological Disorders and Stroke. But she was aware thathis condition started to worsen a few monthsago in spite of the heroic effort his parents were doing with him, she said. And you see him how hes struggling to really do the best he can so he can move, so he can gain some strength to crawl or do something., You feel the pain of Rett syndrome, and I felt that pain with so many patients before him, she continued. [citation needed] Having escaped after five days in captivity, Engel said he believed that a Shabiha group loyal to al-Assad was behind the abduction, and that the crew was freed by the Ahrar al-Sham group five days later.
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